Let's Talk About The Mental Game and Physical Reconditioning AS Warriors Play & Good Care Team Importance!

Being diagnosed with Ankylosing Spondylitis (AS) in 2015 and navigating the ups and downs of this journey has taught me some invaluable lessons:

1. Movement is everything when it comes to quality of life with AS. It’s not optional—it’s essential.

   
   

2. Pain doesn’t always mean stop. For AS patients, we have to unlearn the idea that pain is a signal to halt. Instead, pain (except in cases of acute injury) often means we need to keep moving. Retraining our brains to push through the discomfort is key to reaching the other side, where our bodies work better and we feel so much stronger. This isn’t easy, but with the help of biologics that slow disease progression and medications to manage pain, it becomes possible.

   
   

3. A phenomenal care team is absolutely essential. If your doctors don’t take the time to know you as both a patient and a person, don’t settle. In the U.S., we’ve sadly normalized mediocre care, but it doesn’t have to be that way. I went through four rheumatologists before finding my incredible husband-and-wife dream team—doctors who are as committed to my well-being as I am. It took nearly eight years to build my perfect care team, but it was worth the effort. They are my lifeline, and I wouldn’t trade them for anything. If your care team can’t support you through the toughest times, find one that can.

AS can be overwhelming, unpredictable, frustrating, and downright terrifying, but it’s manageable. With exceptional care teams, consistent movement, the right medications, sheer determination, and a little grit, you can take control of your life. Don’t ever settle for less than the care and support you deserve—you’re worth it.

Dr. Kimberley and Dr. Hayes Wilson, thank you for your unwavering dedication. I’m beyond grateful to have you both on my team!"